FlickyTailSunrise

I got lost in the feeling and the sound.

  • My new abode in G1 is indeed a step up from Wards, which upon vacation required KevKev and a friend to have a quiet moment in the Chapel…

    I am relieved to be at last in the right hands, where I don’t have to keep explaining my case. There are far fewer beeps and midnight mumbles which has been a relief.

    Physical relief has though been quite far off. My white blood count is v.low and requires daily boosting, that along with the: antibiotics, pain relief, blood cultures, chewy calcium, morphine squirts and sky rocketing temperatures these last few days have taken their toll.

    I have tried to be brave and pushed myself to shower when I least felt like it, walk and rearrange my room (…although I do enjoy a bit of a room potter).

    So despite there being no doubt that here I shall be for the next few days, I am fine with that. Visiting is quite open over this time and I am feeling relatively brighter than before, though quickly tired…

    Have a fantastic Christmas All.

    I shall be thinking of you All.

    Peace Out!

  • Booking.com review of the weekend of 19th -22nd December.

    Sunday service sucks.
    Saturday disappeared into a fog and Friday night – the less said about that the better.
    I’d love a bath and a hot bacon sandwich.

    Anyway…

    I have been back in hospital since Friday. The side effects of the chemo have hit big time, all at once and with just, it seems the worst timing in the world. A mini seizure stopped me leaving on Friday, thankfully KevKev and a Green Man saved me the pavement. If only we could predict theses things and time them more effectively… Christmas. Dr’s strike, only 12 beds in The Macmillan Uni (so am currently on The Stroke Unit, which actually only has one Stroke patient) no weekend Drs all combined to have made this quite something.

    Given the infection I am now on a hefty regimen of antibiotics and may have to stay in until that is finished. This morning is the first time I have felt much for the outside world. One of the Ladies whilst sleeptalking put it rather beautifully… “oh its so scary when you watch yourself disappearing and can’t remember who you quite were to begin with.”

    Of course I’m not quite there but there is a madness to illness and hospitals.

    I’m not sure when I will be back home to the sanctuary of my husband,  fluffy child and home but hope you’re well, appreciating the good stuff and eachother.

    With all my love…

  • So arrived for the PICC line insertion at 8.30. Not fun.

    They agreed on the right arm, found nothing to go in on, then the left, hit a nerve a couple of times, which was like being electrocuted.

    KevKev had to come in and hold my hand then as they went back to the right arm.

    Then, obv. Daddy or Teddy had come in too and a vein that hadn’t been there before, appeared.

    Thank you for all your prayers, they worked, as did the incredible skill of the Nurses and Specialists. I now have a line for the treatments to come over the next 12 weeks.

    The Treatment began at 10 and is still going after they had to stop for a bit after an hour of the chemo bit, had to have an injection to counteract the side effects…. and I am now off again.


    I will be attached to a much bigger than expected pump for the next two days for the last dose.

    It has been scary. I think I have been brave. I am ever grateful to God, to the Ever shifting Spirit within the World, that I have such incredible friends whom I love so very much.

    If this makes no sense I blame the drugs…