Been out adventuring. Met a friend to explore the V&A in London last weekend. Breathtaking sculptures, great company and good pizza made for a marvellous time. The trains of course proved not quite as resilient, lines down and power outages due to the first great storm of the season, meant they were completely packed going…

Round 3 starts later… after only 3 well days it feels a lot more difficult than previous Rounds. I rely on those well days to give me the resilience and strength for the next week. So a little depleted, here we go… Round 2 was not great. A DrP checkin phonecall gave me more of…

So the return to Treatment has been in part disappointing and in other respects, so much more than that. I had (we had) imagined that maintenance might have been different: fewer side effects and just something to slot in to the day to day… Then I came back to Earth… Day 4-6 were as awful…

After three months I returned to Treatment today. With the removal of the harshest of the three drugs, I am now left with two: drug 1 administered over 90minutes and drug 2 over two days via a ‘pump’ that is attached to my pic line. Anxious, I arrived at the Unit at 10.45am… Treatment didn’t…

September and the world around me has refocussed on beginnings. For the first time in 18years I’m feeling the end of Summer more sharply than ever before. It has been an excellent Summer.  This chemo free existence was not anxiety free. The biggest stimulus for the anxiety was wondering if I’d made the right decision…

With just a month left of this chemo free idyl, I want to record a few thoughts. I made the choice to take the three months break mostly because the thought of going straight back to Treatment after only a few weeks off felt too much, I was not psychologically ready. There were two big…

After an anxious and hot wait, eased by stories from our recent escape and a second round of box breathing, we were called into DrPs office an hour after our alloted time. We had remembered to check in. Greeting us a large computer screen showing three scans: the initial scan from December; the second from…

I had my update call from the Nurse Specialist yesterday. I told her all about the neuropathy in my hands and feet. Due to the severity of the side effects Round 12 will not be done on Monday and for now I am finished this epic, monumental six month cycle. The next step is the…

Round 11 has not been the step forward I was hoping for. Being so close to the twelfth I was hoping it would pass with the same relative comfort of ten. There is of course no logic or reason why this should be so, other than it is near an ending of sorts, where experience…